Sigh. Last night I turned off the hose because she wouldn't water the flowers, she kept trying to soak Tuwella's towels on the clothes line instead and she got really mad and tried to spit on me. That's so gross. I made her sit in a chair in the boring corner for five minutes and I told her she could get up and play if she said she was sorry and meant it. She said "SOR-REEEEEE Ass Monkey!" I told her that would cost her and she said "FINE! I will sit here and have no fun forever for the rest of my life and my life is ruined all because of YOU!" And she sat there on her own for 20 more minutes, which is way too long for a five year old. She wanted me to say I was sorry and beg her to play, but, I couldn't because she gets away with too much and it's not good for her. It was confusing and awful and it made me feel bad. You can't win (a pissing match) with this one.*
I bought Match Box City at a yard sale and we tried to put it together later, but, it was too hard. And I had the instructions. How is any kid supposed to put that crap together? We made roads and set the buildings out by the roads and it has street lights and copters and a McDonalds. I got my $10 bucks worth of fun from it, but, that's stuff is not kid friendly. Mattel should be ashamed of that stuff. Lissa was really sweet this morning and fed BeeBee most of her cereal. But, she ate three cheese burgers and a milkshake last night. Maybe she was still full. This morning she hugged me and said she was really really sorry for last night and she meant it. She just has to think on things awhile.
46 comments:
Awwwww :)
She looks so sweet in that picture. Ralphie is having a problem with the cussing too. I am at a loss at this point as I have tried everything. He got way too overstimulated on a recent trip back to Cowtown and he said "You are all assholes!" and walked out the door. *sigh*
Was he looking at the back of the cows? Heh.
LOL Maybe in his perception teehee. That is just a fond nickname I have for Columbus:)
Pat,
I know you love this little peace, but you are sharing her meltdowns and private moments, and it just is not right!
this girl is going to have enough problems without you, her crazy Gram putting her pictures all over the web.
This is not right.
Anon(of course),
What exactly is the big deal. Every kid has some type of issue whether it be cussing or tantrums or all of the above. It is no different then discussing your kids with a friend. You are also a fucking asshole for this remark: "this girl is going to have enough problems without you, her crazy Gram putting her pictures all over the web."
How the fuck do you know that she will have "problems"?
anon 5:04, go fuck yourself...
I second what mis tia said. Anon 5:04, I think you've taken your anti-gosselin zeal a bit too far. If it bothers you so much, read elsewhere!
weird I made a post & it's not posted. Ah well, was only to tell the troll to piss off & relate a story about my 2 year old saying "fuckit" lol
5:04:00 PM, I have never described her tantrums, which were caused by Chiari. Not once. I just said they were bad and people should look into the malformation if they have a major tantrum child. I don't put her "all over the web"..I put her here on my personal blog. Let me know when she makes it to D-List.
PS..I think she's cute, so there.
Everyone, I agree: Anon 5:04 should go fuck themself. Pat is such a loving, caring Grandma. She has not and would not do anything to hurt that sweet little child. Buzz off, Anon 5:04.
Friends meet here.
Pat,
I was not aware Lissa had Chiari. Ralphie was diagnosed with Chiari 1 malformation when he was 10 months old(he started turning blue etc, mri to rule out seizures found it). What is her herniation? Ralphie started out at 7.4mm and was 17mm the last mri we had done. Chiari kids have increased risk for things such as Autism and sensory issues. Does Lissa have any of those? Ralphie was diagnosed with Ashbergers when he was 3. Sorry to ask so many personal questions, its just the 1st time I have "met" someone else with Chiari. It seems to be pretty rare. Anyway sorry again for the nosiness!
Oh my! I haven't met very many people with a Chiari kid either! Yep, malformation of the skull and she had three brain surgeries. Her problem was severe and rare. She was in a lot of pain and couldn't tell us. No one understood her except my son (her dad) and he knew. Her tantrums were legendary and I was so sick of people saying she needed a spanking. If we'd been spankers, we could have killed her. Her brain enlongated and grew into her spine. She developed Hydrocephalis and Meningits. They eventually took the back lower part of her brain out (it was atrophied and caused loss of movement)and told us it would save her life, but, she'd probably be institutionalized. She recoverd totally and is sharp and mobile. She favors her right side and has a temper problem, but, in general, she's healthy and bright, loves sports and art. She's not Autistic.
How is Ralphie? What are they going to do for him? Is his case severe or do they think he can be alright without surgery? I hope you answer back, and thanks!
I had to look up Aspbergers (sp?), that's rough. Does Ralphie talk? Lissa had trouble and was a late talker, but, was never diagnosed with Aspburger. She talks just fine now though, except for a few hard sounds, like Qs. She has social problems and is in a special class. She likes to read. She catches on to letters and words really quick.
He was in Childrens in Columbus for a month and they didn't know what to do with him. He would scream for hours on end. I truly wanted to run away. It was so bad. His Ped thought he may be having migraines from the increased intra-cranial pressure and wanted to put him on Depakote(mind you he was only 10 months old and couldn't tell us shit) I said no to the Depakote and the Neuro agreed as he was progressing fairly normally. We were then sent to the Cleveland Clinic to see if he was having true seizures. He was not, just severe breath holding spells that can mimic seizures. They were fucking scary that's for sure. I took quite a bit of Xanax at this time LOL The 1st one he had I thought he was dead. So anyway his has progressed from 7.4 to 17mm. He has also developed a syrinx(sp?) from the increased pressure. The breath holding has decreased to the point of not having one for almost 2 years. He definitely has the tantrums and intolerance of stimuli but considering his infancy, I'll take that! The other thing is he DOES NOT SLEEP! This kid has not slept more then 3 hours since the day he was born and stopped taking naps at 12 months old. The problem we are having now is with his swallowing(very common with Chiari kids). He chokes all the time so we have to be extra vigilant. The weird thing abotu Chiari is the amount of herniation is not always relevant to the severity of symptoms. Ralphie has a very high degree of herniation but relatively minor symptoms. So really we are just in a wait and see holding pattern. I am sure he will have to have the decompression surgery in adolescence(when Chiari usually presents itself) but maybe not. I wish you the best of luck. To see Lissa doing so well makes my heart swell and gives me hope!
And her parents allowed a TV special to be made and it showed her at her worst before the surgeries, and I hate it, and I don't think I have to apologise for putting her cute pics on my own blog. Geesh.
I will always be greatful that her father lived long enough to see that the last surgery was a sucsess and she has a real chance at being a normal person.
Ralphie did talk at 2.5 but we were the only ones who could understand him. He didn't really form words until 3.5, now you cannot shut him up LOL I would say that Ralphie is very shy and a bit socially awkward but does well overall. He can hold himself together at school but is a holy terror when he gets home. He actually could read before he could talk so we could understand him. I think the high intelligence is common with Aspergers. It hurts me to see him struggle socially as he has a very hard time with body language and boundaries but things could be way worse. He is a sweet boy with a horrible temper.
Thanks, Nissa. Chiari is scary, that's for sure. And yes, the swallowing thing was heartbreaking. The inability to sleep is frustrating to everyone. I remember that too. She sleeps well now, but, doesn't seem to need as much sleep as anyone else. It's weird. I'm glad Ralphie is doing so well and not in pain. I've heard of people that have it all their life and never need the surgery. So, I guess you just have to wait and see. It's endless though, isn't it? The doctor, hospitals, surgeons, check ups. So hard on little ones. Keep me up to date on Ralpie and give him a hug for me.
Pat,
You post her pictures all you want! They are a testament to how far she has come. That would be tough to have video of that. I have seen several and it is hard to go back to that place.
Yep, when I figure out how, I'm going to put her cute vids on. She's so funny.
LOL..two pissed off kids when they get tired. We're all assholes! I love that. Now, I understand.
Yeah it was very hard for me to punish him because I know that traveling 3 hours by car, then seeing people he didn't know well, plus he was tired.....I should have known better. I know his limits and when he has reached them but I tried to push it. I am hoping to develop his coping skills as he gets older so he finds more constructive ways to say "I'm done"
That's good. Chiari kids are a challenge. None of this stupid family can figure out that Lissa doesn't respond to yelling and ultimatums. You always have to bargain with her. Make trades. Keep a calm voice. Ehh, you know.
And it's so hard to punish them. It just seems so mean with all the stuff they have to go through. But, again..you know. They know it too, lol.
Do you have any tips for helping them cope and not lose their temper?
yup the trials and tribulations Pat, but reading from the other side of the fence, it does bring a smile to my face because Alissa is just so cute lol, but I know at the time and it involves you it isn't so cute.
You do wonderful with her and you know which fights to fight and which ones that aren't worth it and she is growing up being a better person because she spends time with you.
Just count to ten, smile and keep going :).
Crystal
We got Ralphie a stress ball. His OT had suggested it and it does help most of the time. He knows if he is feeling angry or frustrated he can go get the ball and squeeze it till he calms down. We had to be very consistent with it and now he usually will go get it automatically when he is stressed. You can make her one with balloons and cornstarch or sand. These kids do not want to be aggressive however they manifest their behaviors as such when they feel cornered or overwhelmed because they just cannot handle it. We have pretty much gotten a handle on the stuff at home. Now it is dealing with strangers and public situations such as the one I posted about. I have not found anything that works except for watching his cues and getting him out of the situation and anticipate any problems and be able to act quickly. Definitely trial and error.
Lissa would make a perfect "Little Orphan Annie". She's adorable and has a lot of spunk and isn't afraid to show it. I had the spunk, and was in constant trouble as a kid, but I wasn't cute like Lissa.
Pat,
Gads, I can't believe the challenges Lis has been through and how mature she is for five. I've had some stuff going down in my life lately and I've been doing something called EFT. It helps in some sort of way that short circuits negative emotions and helps things not be as traumatic. They have used it to help people with PSTD from war and kids with PSTD and other neurological conditions.
It's just tapping on certain spots of your face and such and repeating phrases, but it has made a difference for me. Maybe it would help?
I'm really mad about this comment anon 5:04 made. Why the hell can't people just stay off this blog if they are going to post stuff like that? I need to go take a chill pill now and eat some M&Ms. Yeah, that's the ticket. I'll feel better shortly.
Gee, anon, this stopped being a gossip blog months ago. In the words of Miss Tia, go to fuckoffmeland....
Anon 5:04, in case you have not heard what the previous posts said: FUCK OFF.
And go live your life elsewhere (assuming you have a life... Ooops - Sorry, I guess you don't. That explains a lot).
Pat, don't stop sharing your Lissa stories with us.... we have all come to love her.... we celebrate her progress and we laugh at her antics... whoever doesn't like reading about her can just screw themselves.
All of you have come to learn how dedicated Pat is to Lissa, how she adores her and would do anything in this world for her. I've been there since the beginning, the birthd, the pain, the surgery etc and let me tell you, I have never seen a grandma as dedicated to a child like Pat is. She suffered Lissa's pain like it was her own, she hardly slept during the hospital stays, her life revolved around Lissa's well being. So Anon can go sit on a hot nail and rotate instead of criticizing things he/she has no idea about.
Pat;
I love everything you post about, but the Lissa posts are my favorite. I'm a grandma, too. I've never seen a pic of your g-baby on the toilet, or footage of anyone pulling a compacted turd out of her while she screams in pain. Nope, none of that here. I can actually feel the love between the two of you when I read your posts.
So we can all stand together and flip a collective bird at Anon 5:04. Stop harshing the mellow of this blog.
Anon,
You'll never see this child having a bowel movement on reality tv. You'll never see pics of her in a national tabloid being smacked by Pat in their driveway. Pat will never whore this child so she can become a celebrity, freakshow host.
Go back to Gosselin land and lick a picture of Kate for a bit so you can calm down.
I had never heard of Chiari. Thanks too yours and Nissa's sharing of info I have learned so much. Thank you both.
I have always thought that Lissa was simply an adorably precocious child. Seeing and hearing what this tot has endured and survived is indeed a tribute to her strength and the care and love she has been given.
Pat, You are a wonderful grandma! I don't think cruelty,yelling, ultimatums, agressive discipline or any of the violent techniques some parents use on their children works over the long term. I think intelligent communications, good example setting and bargaining go much futher in teaching them, life-skills."
I have come away from this post with a whole new level of respect and admiration for you and so much more appreciation of what a little miracle Lissa is.
Nissa I hope all goes well with your, "miracle child" as well.
aw she is such a doll. LOL I cant wait till ava start's doing things like that.She is only a year old. She is already going through her terrible ones to. Yesterday when I came home I was told the cops came over. My daughter called 911. I was in shock..
Thanks for the suggestions. I like the stress ball idea, never heard of it!
Nissa, aren't you the one who nicknamed your son Rainman? You got a lot of shit for that, but, I thought it was funny. I call my brother Rainman, he's not retarded either. He's OCD (among other things) and he counts stuff all the time. He can't function without counting. I just think it's amusing.
And I have to add, the meds they put this kid on after her last surgery were ridiculous. Liquid morphine based shit and they were supposed to give it to her several times a day. She acted all spaced out and drooled. I got curious one day and took a sip of it, after she went home. OMG, that shit was like heroin. It was awful and I only took half the dose she took. I insisted we wean her off it. And we did. She now asks for regular children's pain meds and only when she needs it. She doesn't ask for it often anymore, only when she has a bad headache.
Pat,
Yes I do call him Rainman LOL I am not being derrogatory towards him at all. It is a joke because of the OCD tendacies and routines. It pissed me right the fuck off! I mean it is my child and I have to laugh or I will cry. My friend actually bought me a shirt that says "RainMom" lmfao! I wear that shirt with pride. :)
Well, I think it's funny and I get it.
And you DO have to laugh or you'll cry sometimes. People shouldn't judge.
I know you get it Pat:) That is why I love your blog and your nonjudgemental attitude. Well except for the ones who need to be judged because they whore their children out etc.....
Pat - the way you treat Lissa and the way you convey the stories with her remind me so much of my grandma. I lost her when I was 12 and still miss her terribly. She was the best and I think you are an outstanding grandma!
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